"God doesn't give children with special needs to strong people; He gives children with special needs to ordinary, weak people and then gives them strength. Raising a child with special needs doesn't take a special family, it makes a special family."
" Faith makes life possible. Hope makes life workable. Love makes life beautiful."

The Winwards

The Winwards

Friday, April 10, 2009

A lot of feelings

So here is what has been in my head for the last few months:

After Tanner was born, naturally I was less than happy of the fact he had Spina bifida, but we had had several months to get used to the idea, so we were just so excited over every single wiggle and wet diaper.

Now that sense of intial relief is past and I am just pissed and sad over this whole thing. I sit through physical therapy, clinics, and many many doctors visits, thinking I can't believe this is my new life. We have had 5 doctor's appointments in the last 5 days and 1 surgery. I sit and watch other babies kick their legs, move their toes, and start to toddle around and I wonder will my son ever be able to do that. Needless to say I am scared to death that he won't!

I hear other mothers with uncomplicated children complain about things that seem so trivial to me, and at times I just want to smack them, or tell them not to worry so much, because it could be so much worse.

Now don't get me wrong, I love my baby boy and he brings us so much joy. The wait and see just makes me crazy.
And a big part of the frustation is Tanner is deceptively such a normal baby. Everyone keeps coming up and exclaiming about how God answered all our prayers and how great he is doing or they ask if physical therapy is making him regain movement and I think, he looks normal, because he is not trying to walk and is wearing a diaper right now. We don't know yet, if our prayers are answered.

I hope that things will get better as he gets older and I'm able see his skill level and I can picture what his life will be like. Someday I hope when I hear the words Spina Bifida, I won't cringe anymore. I also hope that one day I won't try to find a reason why Tanner was born with all of these challenges, and I can stop blaming myself for it. I know that these things just happen, but I still wonder if I could have done something to change it.

I'm not saying all of this to have anyone feel sorry for me. I'm just clearing my head.

I try to always wear the happy brave face, but inside right now, I am not so happy or brave.

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