"God doesn't give children with special needs to strong people; He gives children with special needs to ordinary, weak people and then gives them strength. Raising a child with special needs doesn't take a special family, it makes a special family."
" Faith makes life possible. Hope makes life workable. Love makes life beautiful."

The Winwards

The Winwards

Friday, October 10, 2014

Update on the boys

So the last time I posted on this blog was Aug 2013.  Pretty sad, but at the same time it proves that I live a busy life with my little family.  Tanner is going to be 6 on December 15th, and Connor will be 3 on November 17th.

Tanner is loving life.  He is really into WCMX (wheelchair skating).  He LOVES going to the skate park!  Loves the ramps and the thrill!  He is learning more and more each time we take him.  We have been to more in California for WCMX clinics.  Wish we could afford to go to more.  He has met some amazing kids and adults, all into WCMX.  We were able to get him a WCMX wheelchair this past May, with help of fundraising.  He calls it his "Superman Chair"

He is now in Kindergarten at Paideia Academy and is really thriving.  He is the only child there that uses a wheelchair so it has been a learning process for all involved.  But so far it has been a positive experience.

Spina Bifida, Hydrocephalus, and Chiari malformation wise, his last surgery was in December 2013 on his left foot.  He was born with clubfeet and it was reoccurring on his left foot, so that had to be fixed.  He has now had 8 surgeries in his life.  We also started cathing for social continence at school.  He has done quite well with that transition.   He does have a tethered cord, but is non symptomatic right now.  That is being watched, and he will most likely need spinal surgery in the future to release his spinal cord.
Tanner was so excited that his Orthopedic Surgeon gave him a Candy Cane cast, just in time for Christmas!

Connor is my rambunctious, fiesty, little ham.  He finds humor in everything, loves to laugh, and gets into everything!  He walks, runs, jumps, climbs, and gives this mama a heart attack at times.  He jumped off the couch to the tile, and got a hairline fracture in his foot and had to wear a boot for awhile. His favorite color is blue, and he loves to give cheezer smiles.  He really is my sunshine!

Tanner and Connor have so much fun together.  They are so good for one another.  Connor has the adventurous spirit that Tanner doesn't.  And Tanner has the sensible side that Connor doesn't.

They have loved each other from the very beginning.

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